i wanted to write about my trip to new york. i really did. new york was fantastic and inspiring and frantic in the way it always is. but it seems far away. despite the fact that it was just over two weeks ago. life has, once again, trumped art. the immediate has trumped the most recent past.
so here we go again. another entry about the world beyond paper. in fact (and bear with me) this entry is about the world of blood. and how that world has just taken on greater import in my life. albeit, rather despairingly. the reason being is that our oldest son graham - who is a flurry of words & movement & sinewy beauty - was recently diagnosed with type 1 diabetes. our ever-curious, science-minded, book-devouring, chess-playing, ingeniously witty boy has a pancreas that is just not working properly. in fact. its failing.
it was a day like any other. to begin with. i suppose. there was this wee little voice that was telling me that something might not be right. that graham was increasingly really hungry and really thirsty and looking more and more peaked. and the 'growth spurt' theory wasn't really holding water. he was getting thinner. not taller. but i am, at the core, a pragmatist. and as my husband will loudly attest never one to 'jump to any conclusions.' 'diabetes doesn't run in our families' was my life-line. and i was hanging on. but zach jumped. thankfully. and an appointment was made. and graham was checked. and life as we knew it shifted. rather dramatically. we were catapulted into a world of fingerpricks & carb counts. of doctors appointments and clinic visits. of calculations and shots. and more shots. and then there is THE blood. blood that we always hope to be just 'right' (but thus far never seems to be).
if nothing else it is a testament to how mutable life can be. how easily priorities can shift. how amazingly brave a 10 year old can become.* within a single day. but you adjust. and life continues. and you truly appreciate the idea of taking things one step at a time. because you understand how absolutely necessary that is. and so when valentines day arrives you are equipped. because its just one day. one party. one decision that it will be about LOVE (and books) rather than SWEETS (and candy). ok. a little bit of sweets (we counted. and dosed). and you get through it. and you realize what you didn't know beforehand. fully. that people have strength you didn't think possible. yourself included. and that when one thing fails, other 'things' step in to assist and comfort and lighten the load. and so i end with a thinly veiled thank you. to our friends (which includes my support team at work and home). and our families. especially my unflinchingly strong husband. to graham's doctors. and nurses. to modern medicine. and synthetic insulin. to running. (definitely running). and to graham. for being so hopeful. and perservering. and unreservedly lionhearted in the face of it all.
* graham is administering his own shots. has adjusted his diet without complaint. and pricks his finger umpteen times a day. like i said. AMAZINGLY BRAVE.
